2) Where do you live? USA
Another country

3) Do you have a confirmed diagnosis of pulmonary sarcoidosis? Yes
No

4) When were you diagnosed with pulmonary sarcoidosis? Within the past 6 months
Over 6 months ago

5) Did you have a biopsy that confirmed your pulmonary sarcoidosis? Yes
No

6) Are you currently being treated with oral corticosteroids (e.g. prednisone)? Yes
No

7) Can you provide evidence of your diagnosis and treatment? We need to be able to check the following points:

• That you have been diagnosed with pulmonary sarcoidosis
• That you were diagnosed at least 6 months ago
• That you are currently receiving treatment with an oral corticosteroid

There are a few types of evidence you could send to us. This could be a screenshot of your medical portal, a photo of your prescription, or a letter from your doctor. We can also give you a form for you to take to your doctor, for them to sign.

Yes, I can provide evidence of all three points.
No, I can’t provide evidence.

8) Which of these options best describes how you experience breathlessness?
I only get breathless with strenuous exercise

I get short of breath when hurrying on level ground or walking up a slight hill

On level ground, I walk slower than people of my age because of breathlessness, or I have to stop for breath when walking at my own pace on the level ground

I stop for breath after walking about 100 yards or after a few minutes on level ground

I am too breathless to leave the house or I am breathless when dressing/undressing

9) Please read each question carefully and answer by selecting the response that best applies to you. Please answer ALL questions as honestly as you can. This questionnaire is confidential.

All questions relate to how SARCOIDOSIS has affected your health.

In the last 2 weeks...

My cough has caused pain/discomfort

All of the time
Most of the time
A lot of the time
Some of the time
A little of the time
Hardly any of the time
None of the time

I have been breathless climbing stairs or walking up slight inclines

All of the time
Most of the time
A lot of the time
Some of the time
A little of the time
Hardly any of the time
None of the time

I have had to take deep breaths, also known as ‘air hunger’

All of the time
Most of the time
A lot of the time
Some of the time
A little of the time
Hardly any of the time
None of the time

My chest has felt tight

All of the time
Most of the time
A lot of the time
Some of the time
A little of the time
Hardly any of the time
None of the time

I have had episodes of breathlessness

All of the time
Most of the time
A lot of the time
Some of the time
A little of the time
Hardly any of the time
None of the time

I have experienced chest pains

All of the time
Most of the time
A lot of the time
Some of the time
A little of the time
Hardly any of the time
None of the time

Next

10) Are you willing to take part in a one-on-one interview that lasts 60 minutes?

You will need to use Microsoft Teams on your computer, laptop, or tablet, using your own internet connection. We can help you to use Microsoft Teams.

Please note that a smartphone will not be suitable for this interview. Yes, I can join a 60-minute meeting on Microsoft Teams using my computer, laptop, or tablet.

No

11) Can you read, write, and speak English fluently? Yes
No

12) Are you willing and able to provide written informed consent? Yes
No